Department of Pathology Australian National Creutzfeldt-Jakob Disease Registry

The Australian National CJD Registry

Creutzfeldt-Jakob disease is one of the human forms of the transmissible spongiform encephalopathies (TSE), also referred to as Prion diseases. The Australian National Creutzfeldt-Jakob Disease Registry (ANCJDR) was established in October 1993 in response to the recognition of four probable Australian human pituitary hormone related CJD deaths and is responsible for the national surveillance of clinically suspected and diagnosed CJD individuals, under contract to the Commonwealth Department of Health. The ANCJDR is under contract to the Commonwealth to determine all suspect cases of TSE in Australia. Patients can be suspected with any of the various forms of TSE's, including classical CJD (sporadic or genetic).  Acquired CJD is a separate class and includes both medically acquired CJD and the most recently recognized form identified in 1996, named Variant CJD (vCJD).

CJD has been scheduled as a notifiable disease in all Australian States and Territories. Please refer to the Communicable Disease Section of your local Health Department for further advice. Notification is indicated where a strong clinical suspicion for prion disease exists.

Specimen Reception and Office Hours over 2015/2016
Easter / Melburne Cup / Christmas / New Year

The Registry is closed from Good Friday to Easter Tuesday inclusive (3rd April, 2015 – 7th April, 2015).

Melbourne Cup weekend - Closed from 4pm, Friday 30th October until 9am, Wednesday 4th November 2015.

Christmas / New Year - Closed from 4pm, Wednesday 23rd December until 9am, Monday 4th January 2016.

Please hold all diagnostic samples during these periods.

Melbourne Cup weekend - The Registry office will be open during business hours including Cup day.

Christmas / New Year - Closed from 1pm, Thursday24th December, 2015 and will reopen at 9am, Monday 4th January, 2016.