Department of Pathology Australian National Creutzfeldt-Jakob Disease Registry

The Australian National CJD Registry

Creutzfeldt-Jakob disease is one of the human forms of the transmissible spongiform encephalopathies (TSE), also referred to as Prion diseases. The Australian National Creutzfeldt-Jakob Disease Registry (ANCJDR) was established in October 1993 in response to the recognition of four probable Australian human pituitary hormone related CJD deaths. The ANCJDR is under contract to the Commonwealth to determine all suspect cases of TSE in Australia. Patients can be suspected with any of the various forms of TSE's, including classical CJD (sporadic or genetic).  Acquired CJD is a separate class and includes both medically acquired CJD and the most recently recognized form identified in 1996, named Variant CJD (vCJD).

CJD has been scheduled as a notifiable disease in all Australian States and Territories. Please refer to the Communicable Disease Section of your local Health Department for further advice. Notification is indicated where a strong clinical suspicion for CJD exists.

Specimen Reception and Office Hours over Melbourne Cup/Christmas/New Year 2014/2015

Melbourne Cup weekend - Closed from 4pm, Friday 31st October until 9am, Wednesday 5th November 2015. Please hold all diagnostic samples during this period.
Christmas/New Year - Closed from 4pm, Tuesday 23rd December until 9am, Monday 5th January 2015. Please hold all diagnostic samples during this period.

Melbourne Cup weekend - The Registry office will be open during business hours including Cup day.
Christmas/New Year - Closed from 1pm, Wednesday 24th December, 2014 and will reopen at 9am, Monday 5th January, 2015.


Notification of fee increase

Please note from 1 July 2014, fees for CSF 14-3-3 diagnostic testing will increase. Refer to Diagnostic Testing Fee Schedule page.